On April 26, 2010, our 5-year-old son (3rd of 4 boys), Miles, was diagnosed with a 4cm brain tumor. It was resected on April 28th and on the 30th he was diagnosed with Medulloblastoma. Less than 24 hours after surgery he suffered Posterior Fossa Syndrome with Cerebellar Mutism. A week later his incision leaked and led to Bacterial Meningitis. After almost 2 weeks of antibiotics, Miles cardiac arrested in his Dad’s arms from an undiagnosed Duodenal Ulcer that hemorrhaged. The hemorrhage caused a loss of blood oxygen to Miles’ brain and caused diffuse damage to the motor areas and pathways of his brain. A week later, Miles again cardiac arrested from another hemorrhage and underwent emergency surgery to save his life. After 7 ˝ weeks (5 in the PICU), Miles came home completely trapped within his own body. He had a port and g-tube placed after he was healed. A shunt was placed a few months later after 30 rounds of Radiation to his brain and spine. He then endured 9 intense rounds of Inpatient chemo and developed Symptomatic Epilepsy. He was deemed Cancer-free in August of 2011! On January 25, 2013, a new tumor was spotted on his 3-month routine MRI. He underwent another craniotomy to remove the tumor on February 15th. Pathology reports confirm Relapsed Medulloblastoma. Today, Miles is still severely disabled. He attends a special school in an SXI classroom. He will endure more chemo to hopefully bring him a cure, but his chances are grim. He is a true Fighter and Hero and will always be regardless of where this journey leads. He is our SuperMiles!
We are currently transferring Miles in and out of our van into a Special Needs Car Seat. Most of the lifting is left to me, his Mom, and he is almost 1/2 my weight. During chemo he will have many transfers to endure for appointments. We are working to get him a new Wheelchair Stroller and still hope to order him a Power Wheelchair as soon as he can learn to stop! We want to give him what we can while he is here and what better gift than a van that meets ALL his needs to travel wherever our hearts desire!